As the title of this post might indicate, I just really need to vent right now. Last week, I had a full spinal MRI. The cervical MRI (Which, most of my issues are in my neck) showed my cerebellar tonsils (I have a Type 1 Chiari Malformation) were now at a 4.2mm descent, which, they used to be about 2.4 if memory serves. I’ve been having heart palpitations, fine motor skill issues, and numbness in my hands; all indicators that it’s quite probably the herniation causing a lot of my problems, including the increased pain in my neck, which also suggested I need a referral to a neurosurgeon to discuss decompression surgery.
Today, I had a 10:45 AM telehealth appointment with my pain doctor to discuss the MRI results. I logged into the virtual lobby at ~9:20, just to be sure I didn’t have any technical difficulties. I get a message at 10:23 from a nurse, she was all,
“You know your appointment is at 10:45 right?”
“Yeah, I just wanted to make sure I didn’t have any technical difficulties!”
“Oh, great! Thank you! I’ll get you checked in, someone will be on the call in a few minutes.”
“Thanks!”
At 1:45 PM, after sending multiple messages trying to find out what was going on, I left the lobby. FOUR HOURS after my scheduled appointment time. Fifteen minutes later, I called the office to find out what was going on. They put me on hold, and when the receptionist came back she was like ‘*NP’s Name* has a really full afternoon, so we need to reschedule you.’
WHAT. THE. FUCK? I waited FOUR GODDAMNED HOURS and NOW I have to reschedule because they essentially fucking forgot about me!? It got rescheduled for January 4th. Two fucking weeks from now. And while that may not sound like a very long time to some, when you can barely sleep at night because of the pain in your neck and the fact your heart randomly decides to skip beats, it’s a damn eternity. There’s so much that I flat out cannot do right now because of how badly my hands function, never mind the never-ending pain.
I’m just. So damned angry right now.
