I'm very sorry it's been so long since I've posted on this blog - and moreover since I've done a post relating to chronic illness! Everything else seems to have kind of taken over, but I have a secondary blog for that, now, so there's that, ahaha.
There truly is one recurring theme, or would, perhaps, the better term be phrase? That I see amongst my fellow Spoonies, and that often is, 'I just want to find a way to live my life.' And isn't that really the gist of it all? Even for lifers like me, who genuinely have very little to no memories - if ever they had a life before, for those born with their illness(es) - of life before illness, finding ways to live their lives in the face of chronic illness is truly a constant and ongoing struggle. Some illnesses are more obtrusive than others, some are progressive, some aren't, and some people seem to have more and more illnesses just heap onto their heads like mounds of snow as they slide down a hill in an avalanche of 'what the hell just happened?'
Maintaining any sense of normalcy can be hard, or even impossible, on some - if not many or any, for some of us - days, yet I think it's the one thing we all strive for, the one thing we all fight for on this battlefield in the war we wage with our own bodies every second of every day. Sometimes, finding ways to simplify getting around can feel like giving in - using assistance devices, for example, often makes me feel as though I'm "caving in" to the pain and weakness in my knees and hips from the Fibro and EDSM (Elhers-Danlos Syndrome Hypermobile-Type). The days I have to use the little motor scooters in the stores? Even worse.
Lately, accomplishing anything has been the biggest challenge for me, my heart hasn't been cooperating with wanting to do much, and I begin to greatly wonder if I have Postural Orthostatic Tachycardia Syndrome(POTS, for short) as my symptoms alter and alleviate depending on, you guessed it, my position whether sitting, lying down, or standing. I plan on bringing up a tilt-table test with my cardiologist when I see him in December.
Still, in spite of this, I still try to find ways to deal, to stay active, whether it's finding exercises I can do in bed (pull your minds out of the gutter, now, LOL!) on my absolute worst days, or pushing through the pain and fatigue, which in and of themselves are often overwhelming, throwing on ACE bandages and joint braces, and exercising anyway until my heart starts to throw a fit. A body in motion stays in motion and inactivity is the root of many evils with the Spoonie body, in a lot of cases. Sometimes these exercise bursts just wind up being one-woman dance parties to work up a good sweat - it's silly, it's fun, it's good cardio, and usually I throw some weights in my hands and get some upper body strength training in in the process (when I can find the blasted things.)
But there are always, always those days where the physical and mental symptoms combine to kick me onto my ass where I can't seem to will myself to do much but read or binge watch some Netflix. You know what? Those days are okay, too. Because that, too, is a part of finding a way to live with my illness. Those days of listening to my body and mind and giving them what they need are just as important as pushing through everything with my proverbial middle finger in the air to the pain, because our bodies need that downtime, too, far more often than those of able-bodied people.
All in all, we all have to find ways to live with our illnesses, not just survive with them. If you find ways to accomplish tasks, if you find ways to do things you enjoy, if you find ways to laugh and smile throughout the day in spite of your illnesses, you aren't just struggling, you aren't just surviving, you're living, and that is something to be damn proud of.
Showing posts with label taking care of yourself. Show all posts
Showing posts with label taking care of yourself. Show all posts
Wednesday, November 16, 2016
Thursday, June 23, 2016
The Importance of Decompressing
I know lately my blog has been pretty ranty, and rightly so, really, but right now I want to change things up just a bit. This is a post that's so, so very important, not just for people with chronic illness or mental illness, but for everyone. That's right, everyone. Healthy people, disabled people, people with mental illness, without mental illness, whatever. Everyone can benefit from this post, and honestly, if you found it helpful at all by the end, or agree that it's important, I heavily urge you to share it - not for my benefit or popularity or anything narcissistic like that, but to help other people.
Everything in the world right now is so insanely stressful. It really is. Especially for people who watch the news on the television (I don't; more on that in a bit) or constant surf news websites and/or read newspapers. It seems that the news is 0.01% good news and 99.99% bad news. It's all murder, mayhem, and violence. It's utter carnage. Everywhere. I had to stop watching because it would make me so depressed that I could barely function; it made me believe that there was literally nothing good left in the world, and that the world was going to hell in a hand basket. While to an extent it is, there is still so much good out there, there truly is, but that isn't what the media reports because they would rather stir up the fear, the animosity, etc. At any rate, life is so full of stress for everyone, between the state of the world, politics, work (if you do), relationships (if you're in one), family life (if you have one), well, you get the idea. Then you have the commute to and from work for those that work, which in and of itself is full of its own stresses, and for those who work at home (whether it's a work from home job or being a housewife/househusband) the stress is there constantly, no matter what, and believe me, being a housewife is stressful even if you don't have children. Stress will bog you down and drag you down and make you so irritable and tightly wound that it begins to overflow into everything you do and say without you even realizing it!
Then you have the added stressors of tragic events like the Orlando shooting, or political uphevals like the EU Referendum, what have you, that add further emotional and mental stress into our lives even if we aren't directly involved. While I myself lost two friends in the Orlando shooting, many people were affected by it who knew no one involved simply out of empathy, and as for the EU Referendum, those of us in other countries know what sort of repercussions votes like that can have, both politically and economically, and we thus empathize with the citizens of the U.K. And worry for their future regardless of the outcome of the vote.
Then you can tack on personal added stressors of unforeseen events like car accidents, storm damage to one's vehicle or home, flooding damage, personal injuries, a death in the family, a break up with a significant other... You get the idea here as well. Stress. Is. Everywhere!!!!!
So, what do we do when we want to relax? Well, if you're like the majority of the population these days, you pop onto the computer and get on, say, Facebook or Twitter or Tumblr, whatever. Bad. Idea. Very bad idea. The second you get on any of these, you're flooded with more stressors. Political posts, ideological posts, tragedy posts, stress pretty much starts stabbing you in the eyes, but because you tell yourself it's relaxing time, you trick yourself into thinking you're relaxing when in reality, you're just adding on more stress! Think about it, how often do you get into a debate or argument with someone on the Internet; do you really think that's relaxing? How often do you see a post or meme that irritates or angers you? A story that makes you sad or otherwise upset? This is all added stress! All of it!
While it is important to be up to date with the goings on of the world, it's equally as important to take care of yourself; stress levels today are at record highs and in fact the daily stress of the average high school student, never mind adult, would have had them committed to a psych ward in the 1950s. No joke. Is it any real wonder why so many people are suffering from stress-related depression and anxiety and why so many people are on medications to treat it?
But the truth is... People suffering from stress-induced mental problems don't actually need the medications, they just need to learn how to eliminate stress from their life. I know, I can hear you doing that sarcastic scoff laugh right through my ipad. I've done the same many times when I've read 'eliminate stress' to help reduce chronic pain and Fibro flares. But then I started learning how to eliminate unnecessary stress and holy cow did it work wonders not only for my physical well being but for my mental state as well. How did I do it? Well, let me give you a handy list of some tips and ideas for you to get off the ground with.
Unplug - Stay away from social networking and news websites and skip watching the news on TV. Instead, put on some relaxing music and read a book, watch a favorite movie or TV show, or play a video game.
Unwind - Try a good bath or shower, not just for getting clean but to relax for a while. Give yourself a break to just unwind and decompress after your stressful day.
Decompress - Set aside 30 minutes to an hour of quite time just for yourself, by yourself. What you do during this time, whether you read, listen to soothing music, enjoy a nice cup of tea, or whatever, is up to you, but this is your time.
Indulge - Have a healthy sweet treat; I recommend dark chocolate covered berries or nuts! The endorphin boost is great and there are a lot of benefits to dark chocolate, but don't overdo it - your waistline won't thank you! If sweets aren't your thing, go for whatever your favorite comfort food is, but don't binge; just have a small amount to get that nice 'aaahhh' feeling.
Exercise - Cardio especially is great for this, but any form of exercise provides endorphins and helps relieve stress. Some varieties of yoga are great for relaxing, as well, without being too hard on beginners or people with joint or flexibility issues! Also, a nice evening walk (weather permitting) can be quite relaxing after a stressful day, especially if you can make it to a park or a forest walking trail and spend the time in nature.
Dance it out - One person dance parties are fantastic! Put on your favorite tunes and dance around like a goof ball! It may seem and sound silly, and really, it is, but being silly for the sake of being silly is not only fun, the exercise boosts your endorphins, helps eliminate stress, and the combination of the fun and your favorite music helps to change your mindset. If you have friends about that you can dance it out with, the more the merrier!
Social time - Socialize with people you can relax around, but avoid people who stress you out when you need to decompress.
Hopefully these tips will help, because honestly, decompressing is so important, and stress is getting out of control in society. So, give them a shot, and feel free to let me know if they help and how they work for you!
Everything in the world right now is so insanely stressful. It really is. Especially for people who watch the news on the television (I don't; more on that in a bit) or constant surf news websites and/or read newspapers. It seems that the news is 0.01% good news and 99.99% bad news. It's all murder, mayhem, and violence. It's utter carnage. Everywhere. I had to stop watching because it would make me so depressed that I could barely function; it made me believe that there was literally nothing good left in the world, and that the world was going to hell in a hand basket. While to an extent it is, there is still so much good out there, there truly is, but that isn't what the media reports because they would rather stir up the fear, the animosity, etc. At any rate, life is so full of stress for everyone, between the state of the world, politics, work (if you do), relationships (if you're in one), family life (if you have one), well, you get the idea. Then you have the commute to and from work for those that work, which in and of itself is full of its own stresses, and for those who work at home (whether it's a work from home job or being a housewife/househusband) the stress is there constantly, no matter what, and believe me, being a housewife is stressful even if you don't have children. Stress will bog you down and drag you down and make you so irritable and tightly wound that it begins to overflow into everything you do and say without you even realizing it!
Then you have the added stressors of tragic events like the Orlando shooting, or political uphevals like the EU Referendum, what have you, that add further emotional and mental stress into our lives even if we aren't directly involved. While I myself lost two friends in the Orlando shooting, many people were affected by it who knew no one involved simply out of empathy, and as for the EU Referendum, those of us in other countries know what sort of repercussions votes like that can have, both politically and economically, and we thus empathize with the citizens of the U.K. And worry for their future regardless of the outcome of the vote.
Then you can tack on personal added stressors of unforeseen events like car accidents, storm damage to one's vehicle or home, flooding damage, personal injuries, a death in the family, a break up with a significant other... You get the idea here as well. Stress. Is. Everywhere!!!!!
So, what do we do when we want to relax? Well, if you're like the majority of the population these days, you pop onto the computer and get on, say, Facebook or Twitter or Tumblr, whatever. Bad. Idea. Very bad idea. The second you get on any of these, you're flooded with more stressors. Political posts, ideological posts, tragedy posts, stress pretty much starts stabbing you in the eyes, but because you tell yourself it's relaxing time, you trick yourself into thinking you're relaxing when in reality, you're just adding on more stress! Think about it, how often do you get into a debate or argument with someone on the Internet; do you really think that's relaxing? How often do you see a post or meme that irritates or angers you? A story that makes you sad or otherwise upset? This is all added stress! All of it!
While it is important to be up to date with the goings on of the world, it's equally as important to take care of yourself; stress levels today are at record highs and in fact the daily stress of the average high school student, never mind adult, would have had them committed to a psych ward in the 1950s. No joke. Is it any real wonder why so many people are suffering from stress-related depression and anxiety and why so many people are on medications to treat it?
But the truth is... People suffering from stress-induced mental problems don't actually need the medications, they just need to learn how to eliminate stress from their life. I know, I can hear you doing that sarcastic scoff laugh right through my ipad. I've done the same many times when I've read 'eliminate stress' to help reduce chronic pain and Fibro flares. But then I started learning how to eliminate unnecessary stress and holy cow did it work wonders not only for my physical well being but for my mental state as well. How did I do it? Well, let me give you a handy list of some tips and ideas for you to get off the ground with.
Unplug - Stay away from social networking and news websites and skip watching the news on TV. Instead, put on some relaxing music and read a book, watch a favorite movie or TV show, or play a video game.
Unwind - Try a good bath or shower, not just for getting clean but to relax for a while. Give yourself a break to just unwind and decompress after your stressful day.
Decompress - Set aside 30 minutes to an hour of quite time just for yourself, by yourself. What you do during this time, whether you read, listen to soothing music, enjoy a nice cup of tea, or whatever, is up to you, but this is your time.
Indulge - Have a healthy sweet treat; I recommend dark chocolate covered berries or nuts! The endorphin boost is great and there are a lot of benefits to dark chocolate, but don't overdo it - your waistline won't thank you! If sweets aren't your thing, go for whatever your favorite comfort food is, but don't binge; just have a small amount to get that nice 'aaahhh' feeling.
Exercise - Cardio especially is great for this, but any form of exercise provides endorphins and helps relieve stress. Some varieties of yoga are great for relaxing, as well, without being too hard on beginners or people with joint or flexibility issues! Also, a nice evening walk (weather permitting) can be quite relaxing after a stressful day, especially if you can make it to a park or a forest walking trail and spend the time in nature.
Dance it out - One person dance parties are fantastic! Put on your favorite tunes and dance around like a goof ball! It may seem and sound silly, and really, it is, but being silly for the sake of being silly is not only fun, the exercise boosts your endorphins, helps eliminate stress, and the combination of the fun and your favorite music helps to change your mindset. If you have friends about that you can dance it out with, the more the merrier!
Social time - Socialize with people you can relax around, but avoid people who stress you out when you need to decompress.
Hopefully these tips will help, because honestly, decompressing is so important, and stress is getting out of control in society. So, give them a shot, and feel free to let me know if they help and how they work for you!
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